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Wednesday, June 19, 2013

Wednesday One Word

I know that on Wednesday, it's suppose to be Hodgepodge Day, but Joyce had some excuse about travelling, house cleaning, getting together with friends and being generally busy with life.  She gave herself a "Snow Day" and so there is no Hodgepodge.  The perfect  time to type up my One Word post on Joy.

I have Joy in the husband of my youth. Come July 1st we will have been married for 41 years.  We are High School Sweethearts and we still act that way. We still hold hands in public and often show Public Displays of affection.  I still light up when he calls my name and my nick name, SWMBO. It stands for "She Who Must Be Obeyed."  He has been the care giver to me in the past and he does not leave when the going gets hard.  He sticks close by and takes over. I cannot imagine going through this alone.  How do people do that?? He has given me over 41 years of Joy.  He is my rock.


I have Joy in my doctors.  Dr. Shah has said to us more than once that he doesn't treat lab results but he treats the whole person.  Do they have fight still in them? How do they look? How do they sound?  He decided to continue with Chemo even though I have a kidney infection and am on antibiotics for it.  I'm so glad that he did that.  This whole Chemo thing is exhausting and the thought of posponing it for a week was depressing.  I'm glad he opted to keep on target and press on.


I also have Joy in my Primary Care Physician, Dr. Nguyen, who keeps looking for problems that may come up but problems that I can't feel.  He is the one who found the kidney infection and got me on the antibioticis. He explained that with my current compromised immune system, I cannot tell if I'm sick, so that is now his job.  We have a plan for me to call him if I suspect something is wrong and it's his job to find it.  He has a very strong accent but I must say I am learning to love this man.


I have Joy in our oncology nurse Lisa. What a ray of sunshine she is!! She tells me I'm not nuts when I ask her if my Chemo Port (called Pebbles becasue she is one bump in the road to recovery) can pop out of my skin and be rejected by my body.  She told me no, it does move however as I stretch and bend and that can make it feel like my body is rejecting it.  She always laughs and teases us.  She is kind, loving, and remembers what we like and need from week to week and gets us answers when she doesn't know the answer right away. She is a must in this walk through Multiple Myeloma Cancer.


And most importanly I have Joy in Our Heavenly Father - God!  He put all these wonderful people in our path. We trust Him, so we trust those He sent us to.  He is with us every step of the way and although I have some days of depression, anger, frustration and pain, I Know that I am in good hands.
On those days when I'm feeling down, I remind myself of these things and I find my JOY again.


 

10 comments:

  1. What a great post! Seeing the joy in ones life even in the hard times truly is a blessing!! What great people you have caring for you!

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    1. Thank you Liz. I am trying to remember that there is Joy in every day things even Cancer and doctor's appointments.

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  2. What a blessing this post is ... and an encouragement to all of us that even when we are at our lowest, we can still find JOY, if we just look for it.

    Glad to know that you have a wonderful team caring for you.

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    1. Thank you, I do feel belssed with the Doctor's and Nurse in our life right now. I depend on them a lot as we pray for them all the time. I do hope that my journey helps someone if they end up with cancer some time. I don't want them to be afraid.

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  3. I love that through this walk your are finding joy!

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    1. Thank you for your comment. I'm trying.

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  4. Your photos of your wonderful health care team are so nice to see. Now I can put faces to the names of these professionals. Please tell them that I'm also praying for their continued wisdom as they guide you through this ordeal.

    Even on your low days when you feel crappy, I know you look for the joy. You find it everywhere because you choose to look for it. Joy is all around you even now because of the joy you've brought others during your life. The greatest of which is your darling Gerry.

    Brava to you, girlfriend! Fight on, rock on!
    xox

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    1. Thank you my firend. I'm glad you can put a face with the names now. I know that helps me a lot when I pray for people. Your kind words help me as you are one of my JOYS. You make me feel good about what is happing to me and the way we approach it. I plan to keep up the fight, not sure about the rock on part but sounds like fun. Love ya.

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  5. What a wonderful post. I love your courage and most of all your decision to pick Joy in your circumstances. I'm so glad you have been blessed with such wonderful caregivers. God is so good! I try to pray for you whenever God brings you to mind.

    Thank you for the wonderful example you are setting for the rest of us.

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  6. What a wonderful post this is, and what a blessing it is to those of us reading it!

    Thank you for sharing a bit of yourself and what you are going through. I'm so glad you are able to find JOY in your tough journey. Hang in there ((hugs)).

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